Helpful organizations

Cancer & Careers

Cancer and Careers is dedicated to empowering and educating people with cancer to thrive in their workplace by providing expert advice, interactive tools and educational events. Cancer and Careers strives to eliminate fear and uncertainty for working people with cancer.

 

Resources: Career coaching, publications, support groups, educational seminars

Cancer Legal Resource Center

CLRC provides information and education about cancer-related legal issues, including insurance, employment rights and leave time, access to health care and government benefits, and advance planning to the public through its national telephone assistance line. The CLRC also conducts national education and outreach programs for community groups, employers and healthcare professionals and is actively involved in community activities to raise public awareness of cancer-related legal and public policy issues.

Resources: Education, outreach programs, telephone assistance line, public policy and awareness

HelpHOPELive

HelpHOPELive supports community-based fundraising for people with unmet medical and related expenses due to cell and organ transplants or catastrophic injuries and illnesses. At HelpHOPELive, we HELP relieve the financial burden of a medical crisis, provide HOPE at a time of overwhelming need and support patients and their families to LIVE life as fully as possible.

Resources: Fundraising, customizable campaign page, one-on-one support, grants

Patient Advocate Foundation

PAF is a direct patient services organization with a mission to eliminate obstacles for patients trying to access quality healthcare. PAF provides real-time help for patients facing critical illness as they encounter barriers in their healthcare, by delivering tangible assistance through personalized case management services, financial support towards medication copayments and the connection to vital community resources, all at no cost to the patient or their caregiver.

Resources: Case management, insurance, financial support & resources

 

The Children’s Organ Transplant Association 

COTA helps children and young adults who are in need of a life-saving transplant by providing fundraising assistance and family support. COTA offers free services, including: a customizable website for fundraising, orientation and training programs; reimbursement and expense payments; and ongoing fundraising advice.

Resources: Fundraising, customizable website, grants, training programs

The National Children’s Cancer Society 

NCCS provides emotional, financial and educational support to children, their families, and survivors.

Resources: Financial assistance, college scholarships, publications and support

 Super Sibs/Alex’s Lemonade Stand

SuperSibs, powered by Alex's Lemonade Stand, is dedicated to comforting, encouraging, and empowering siblings during their family's battle against childhood cancer. The SuperSibs program provides free services, both online and through mailings, specifically to help brothers and sisters of children with cancer through, and beyond, this challenging life experiences.

Resources: Activities, resources and the Sibling Ambassador Program

Aplastic Anemia & MDS International Foundation 

AA&MDSIF is the world's leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases. AA&MDSIF provides answers, support and hope to thousands of patients and their families around the world.

Resources: Resources, webinars, courses, patient helpline

CancerCare
CancerCare is a national nonprofit organization that provides free, professional support services to anyone affected by cancer: people with cancer, caregivers, children, loved ones, and the bereaved.

Resources: Counseling, support groups, education, financial assistance

Fanconi Anemia Research Foundation
Fanconi Anemia Research Fund, Inc. was founded in 1989 to find effective treatments and a cure for Fanconi anemia and to provide education and support services to affected families worldwide.

Resources: Family support & education, fundraising, publications

The Leukemia & Lymphoma Society

The MDS Foundation is a multi-disciplinary, international organization devoted to support, research, treatment, and education for patients, caregivers, physicians, nurses and other health care providers. The organization is based upon the premise that international cooperation will accelerate the process leading to the control and cure of these diseases.

Resources: Free publications on blood cancers, professional support, financial assistance, online community

Lymphoma Research Foundation

LLS is the world’s largest voluntary health agency dedicated to finding cures for leukemia, lymphoma, myeloma and other blood cancers. More than $1 billion has been invested in cutting-edge research to advance therapies while support and advocacy programs have helped millions of patients navigate their treatments and access quality, affordable and coordinated care.

Resources: Fact sheets, webcasts, financial assistance, patient education conferences

The Myelodysplastic Syndromes Foundation, Inc.

The MDS Foundation is a multi-disciplinary, international organization devoted to support, research, treatment, and education for patients, caregivers, physicians, nurses and other health care providers. The organization is based upon the premise that international cooperation will accelerate the process leading to the control and cure of these diseases.

Resources: Publications, support groups, forums, videos

Sickle Cell Disease Association of America 

The Sickle Cell Disease Association of America (SCDAA) has a mission to advocate for and enhance their membership’s ability to improve the quality of health, life and services for individuals, families and communities affected by sickle cell disease and related conditions, while promoting the search for a cure for all people in the world with sickle cell disease.

Resources: Family support and education, testing and counseling, and support groups through local chapters

The Sickle Cell Decision Aid 

The Sickle Cell Decision Aid provides up-to-date information of sickle cell disease, its complications, and living with it. The website also provides information of treatment options available, help to identify what is most important when considering treatment, and how to talk with the doctor about your values, preferences, and the treatment being considered.

Resources: Disease information, treatment options, patient experience videos

Transplant organizations

Blood and Marrow Information Network 

BMT InfoNet is dedicated to providing transplant patients, survivors and their loved ones with emotional support and high-quality, easy-to-understand information about bone marrow, peripheral blood stem cell and cord blood transplants. Whether you are just beginning the transplant journey or learning to manage the joys and challenges of survivorship, BMT InfoNet is here to help. Our goal is to empower you with credible information and emotional support, so that you can take a more active role in decisions affecting your health and treatment options before, during and after transplant.

Resources: Webcasts, transplant resources, books

Bone Marrow & Cancer Foundation

The Bone Marrow & Cancer Foundation is dedicated to improving the quality of life for bone marrow, stem cell, and cord blood transplant patients and their families by providing vital financial assistance, educational information, and emotional support programs.

Resources: Financial assistance, education, emotional support programs

The National Bone Marrow Transplant Link 

nbmtLINK strives to help patients, caregivers and families cope with the social and emotional challenges of bone marrow/stem cell transplant from diagnosis through survivorship. We provide vital information through valuable resource books, distributed nationally through our partnering cancer (transplant) centers. Many of our resources are also available on-line. We provide specialized and personalized support services as well.

Resources: Peer support, survivorship programs & publications, webcasts, GVHD support & resources

National Foundation for Transplants (NFT)

NFT is a nonprofit 501(c)(3) organization based in Memphis, TN that has been helping transplant patients overcome financial obstacles since 1983. NFT provides fundraising expertise to transplant patients by organizing fundraising campaigns in the patients’ own communities. NFT’s fundraising campaigns have generated nearly $75 million to assist patients. NFT assists more than 2,500 transplant candidates and recipients nationwide.

Resources:Fundraising guidance and resources, advocacy, pharmacy relationships, media outreach

 

 

Blood and Marrow Information Network 

BMT InfoNet is dedicated to providing transplant patients, survivors and their loved ones with emotional support and high-quality, easy-to-understand information about bone marrow, peripheral blood stem cell and cord blood transplants. Whether you are just beginning the transplant journey or learning to manage the joys and challenges of survivorship, BMT InfoNet is here to help. Our goal is to empower you with credible information and emotional support, so that you can take a more active role in decisions affecting your health and treatment options before, during and after transplant.

Resources: Webcasts, transplant resources, books

The Bone Marrow Foundation

The Bone Marrow Foundation is dedicated to improving the quality of life for bone marrow, stem cell, and cord blood transplant patients and their families by providing vital financial assistance, educational information, and emotional support programs.

Resources: Financial assistance, education, emotional support programs

The National Bone Marrow Transplant Link 

nbmtLINK strives to help patients, caregivers and families cope with the social and emotional challenges of bone marrow/stem cell transplant from diagnosis through survivorship. We provide vital information through valuable resource books, distributed nationally through our partnering cancer (transplant) centers. Many of our resources are also available on-line. We provide specialized and personalized support services as well.

Resources: Peer support, survivorship programs & publications, webcasts, GVHD support & resources

National Foundation for Transplants (NFT)

NFT is a nonprofit 501(c)(3) organization based in Memphis, TN that has been helping transplant patients overcome financial obstacles since 1983. NFT provides fundraising expertise to transplant patients by organizing fundraising campaigns in the patients’ own communities. NFT’s fundraising campaigns have generated nearly $75 million to assist patients. NFT assists more than 2,500 transplant candidates and recipients nationwide.

Resources:Fundraising guidance and resources, advocacy, pharmacy relationships, media outreach

 

 

Halo House

Halo House’s mission is to help save the lives of cancer patients battling leukemia, lymphoma, and myeloma by offering them access to clean, temporary, and affordable housing so that they can pursue treatment at the Texas Medical Center (TMC). Halo House’s vision is that one day no one battling a blood cancer will have to worry about where they are going to live during treatment in Houston, or going bankrupt while paying for living, eating, and parking expenses here, and their rent or mortgage back home.

Hope Lodge

The American Cancer Society Hope Lodge offers a home away from home for free for people facing cancer and their caregivers when cancer treatment is far away. These communities provide a sense of support and emotional connection from others facing the same journey.

Ronald McDonald House

The Ronald McDonald House Program is a home away from home that provides comfort, support, and resources to families who travel far from home for the medical care of their child. Services include comforting meals, quality sleep, and playtime for children.