View educational presentations from live conferences and Webcasts on topics related to bone marrow and cord blood transplant and survivorship.
An Introduction to Marrow and Cord Blood Transplant Webcast
This webcast will help you learn more about the basics of marrow and cord blood transplant, understanding HLA matching, how your doctor searches for a donor, and resources for you and your family. This information is presented by Dr. Willis Navarro, Medical Director for the National Marrow Donor Program* and includes a transplant survivor and caregiver sharing their experiences. View the Webcast presentation at http://dream.presentme.com/audio2010/20100915NMDPNavarro/
Getting Ready for Your Child’s Marrow or Cord Blood Transplant
This webcast will help parents learn more about the basics of marrow and cord blood transplant as you prepare for your child’s transplant. This will include learning about HLA matching, how the doctor searches for a donor, and resources for you and your family. The information is presented by Dr. Nancy Bunin, Director of the Children’s Hospital of Philadelphia Blood and Marrow Transplant Program as well as Professor of Pediatrics at the University of Pennsylvania School of Medicine. View the Webcast presentation at http://dream.presentme.com/audio2011/20110518NMDPBunin/
Reviewing your Medical Insurance and Creating a Financial Plan for a Stem Cell Transplant
This webcast provides information about medical insurance options and guidance for financial and legal planning for stem cell transplant patients. Many medical insurance options exist and are addressed to assist in selecting the most suitable insurance plan. Information about the associated responsibilities of creating a personal financial plan for navigating transplant expenses, and preparing the legal documents needed for delegating caregiving functions in the transplant hospital and at home are also presented. This information is presented by MariaEugenia MacWilliams, Bilingual Patient Services Coordinator in Be the Match® Patient Services and Laura Riley, Esq., Staff Attorney at the Cancer Legal Resource Center, a joint program of the Disability Rights Legal Center and Loyola Law School.
Revisando su Seguro Medico y Creando un Plan Financiero para Trasplante de Células Madres
Esta presentación le da información general sobre las opciones de seguros médicos que hay en los Estados Unidos y orientación financiera y legal. Se revisan diferentes opciones de seguro médico que existen, para que usted decida la que mejor le convenga. También se da información sobre las responsabilidades asociadas con un trasplante y la creación de un plan financiero y los documentos legales necesarios para delegar funciones a quienes lo van a cuidar o ayudar en casa y en el hospital. Esta conferencia es presentada por MariaEugenia Alvarez MacWilliams Coordinadora Bilingüe de Servicios al Paciente en el Programa Nacional de Donantes de Medula Ósea (NMDP), a través de la Oficina de Apoyo al Paciente y Laura Riley, abogada en el Centro de Recursos Legales de Cáncer, un programa del Centro de Derechos Legales de Personas con Discapacidades y la Facultad de Derecho de la Universidad de Loyola. Puede ver esta conferencia en:
http://dream.presentme.com/audio2011/20110707NMDPMacWilliams/
Living Now: Life After Transplant: Your Journey Ahead
This webcast provides an overview of post transplant living - from returning home from the hospital through stages of short and long-term recovery. The focus is on ‘enjoying the journey’ as survivors and loved ones develop skills to help reduce post transplant complications. The web cast reviews some of the potential health risks facing survivors, discusses the physical and psychological factors that can help them in daily living and how, as an educated consumer, to discover keys to living a healthy post transplant life.
This information is presented by Richard Boyajian, RN, MS, ANP. Mr. Boyajian is the Clinical Director of the Adult Survivorship Program at the Dana Farber Cancer Institute and a Nurse Practitioner in the LiveStrong Survivorship Clinic. He was also the recipient of an unrelated bone marrow transplant in 1996 and lives with chronic graft versus host disease as well as other late effects. View the presentation at: http://dream.presentme.com/audio2011/20110824NMDPBoyajian/
Living Now: Healthy Living After Transplant
This webcast will help you learn about the effect of positive health choices, the importance of proper diet and nutrition, the importance of exercise and nutrition as well as the correlation between spirituality and healthy relationships and living a healthy lifestyle. This information is presented by Patricia Culliton, MA Lac, Lecturer. Ms. Culliton is the Director of the Alternative Medicine Division at the Hennepin Faculty Associates in Minneapolis, MN. She is also on the faculty at the University of Minnesota’s Center for Spirituality and Healing. View the Webcast presentation at:
http://dream.presentme.com/audio2010/20100825NMDPCulliton/
Living Now: Monitoring and Managing Late-Effects
This webcast will help you learn about possible late effects of marrow and cord blood transplant, recommendations for prevention of late effects, how to take an active role in your post-transplant care and survivorship resources. This information is presented by Willis H. Navarro, MD, Medical Director of Transplant Services at the National Marrow Donor Program*. View the Webcast presentation at http://www.presentme.com/audio2009/20090923NMDPNavarro/
Meeting the Challenges of Chronic cGVHD in Children & Adolescents
View Webcasts focusing on chronic graft-versus-host disease (cGVHD) in children and adolescents. A collaboration of Be The Match Patient Services and the National Bone Marrow Transplant LINK (nbmtLINK).
Part I
“The Medical Aspects and Management of Chronic Graft Versus Host Disease (cGVHD) in Children & Adolescents,” provides an overview of marrow and cord blood transplants and factors that may impact the development of cGVHD; discusses the prevention and development of cGVHD, and offers information on identifying and managing the disease in children & adolescents. http://www.presentme.com/audio2009/20090901NBMTpart1/
Part II
"Families Coping with Chronic Graft Versus Host Disease (cGVHD) in Children & Adolescents," provides practical advice on how to cope with chronic GVHD and offers the perspectives and advice of three parents whose children are living with the disease. http://www.presentme.com/audio2009/20090901NBMTpart2/
*The National Marrow Donor Program®operates Be The Match®.