View educational presentations from live conferences and Webcasts on topics related to bone marrow and cord blood transplant and survivorship.
LEARN
An Introduction to Marrow and Cord Blood Transplant Webcast
This webcast will help you learn more about the basics of marrow and cord blood transplant. You will learn about:
- HLA matching
- how your doctor searches for a donor
- resources available for you and your family
This information is presented by Dr. Willis Navarro, Medical Director for the National Marrow Donor Program* and includes a transplant survivor and caregiver sharing their experiences. View the Webcast presentation at http://dream.presentme.com/audio2012/20120912NMDP/
PLAN
Getting Ready for Your Child’s Marrow or Cord Blood Transplant
This webcast will help parents learn more about the basics of marrow and cord blood transplant as you prepare for your child’s transplant. Parents will learn about:
- HLA matching
- how the doctor searches for a donor
- resources available for you and your family.
The information is presented by Dr. Nancy Bunin, Director of the Children’s Hospital of Philadelphia Blood and Marrow Transplant Program as well as Professor of Pediatrics at the University of Pennsylvania School of Medicine. View the Webcast presentation at http://dream.presentme.com/audio2011/20110518NMDPBunin/
Reviewing your Medical Insurance and Creating a Financial Plan for a Stem Cell Transplant (Presented in Spanish)
This webcast provides information about medical insurance options and guidance for financial and legal planning for stem cell transplant patients. You will learn about:
- selecting the most suitable insurance plan
- creating a personal financial plan for navigating transplant expenses
- preparing the legal documents needed for delegating caregiving functions
This information is presented by MariaEugenia MacWilliams, Bilingual Patient Services Coordinator in Be the Match® Patient Services and Laura Riley, Esq., Staff Attorney at the Cancer Legal Resource Center, a joint program of the Disability Rights Legal Center and Loyola Law School. View the Webcast presentation (presented in Spanish) at http://dream.presentme.com/audio2011/20110707NMDPMacWilliams/
Revisando su Seguro Medico y Creando un Plan Financiero para Trasplante de Células Madres
Esta presentación le da información general sobre las opciones de seguros médicos que hay en los Estados Unidos y orientación financiera y legal. Se revisan diferentes opciones de seguro médico que existen, para que usted decida la que mejor le convenga. También se da información sobre las responsabilidades asociadas con un trasplante y la creación de un plan financiero y los documentos legales necesarios para delegar funciones a quienes lo van a cuidar o ayudar en casa y en el hospital.
Esta conferencia es presentada por MariaEugenia Alvarez MacWilliams Coordinadora Bilingüe de Servicios al Paciente en el Programa Nacional de Donantes de Medula Ósea (NMDP), a través de la Oficina de Apoyo al Paciente y Laura Riley, abogada en el Centro de Recursos Legales de Cáncer, un programa del Centro de Derechos Legales de Personas con Discapacidades y la Facultad de Derecho de la Universidad de Loyola. Puede ver esta conferencia en: http://dream.presentme.com/audio2011/20110707NMDPMacWilliams/
SURVIVE
Living Now: Staying Healthy After Transplant
This web cast provides an overview of updated post-transplant care guidelines. The guidelines were created to help you understand and prepare for your follow-up care at 6 months, 12 months and 24+ months post transplant. They include an easy-to-understand list of tests and evaluations recommended for each appointment.
This information is presented by Dr. Navneet Majhail who is the Medical Director and Director of Health Services Research with the National Marrow Donor Program and Be The Match in Minneapolis. He is also Assistant Scientific Director with the Center for International Blood and Marrow Transplant Research and Adjunct Associate Professor with the Division of Hematology, Oncology and Transplantation at the University of Minnesota. Dr Majhail is board certified in Internal Medicine and Hematology and he specializes in the care of adult patients receiving blood and marrow transplantation. His research focuses on health services and health policy issues in blood and marrow transplantation and quality of life and late effects in transplant survivors.
http://dream.presentme.com/audio2012/20120816NMDP/
Living Now: Life After Transplant - Your Journey Ahead
This webcast provides an overview of post transplant living - from returning home from the hospital through the stages of short and long-term recovery. You will learn about:
- the potential health risks facing survivors
- the physical and psychological factors that can help survivors in daily living
- how to discover keys to living a healthy post transplant life
This information is presented by Richard Boyajian, RN, MS, ANP. Mr. Boyajian is the Clinical Director of the Adult Survivorship Program at the Dana Farber Cancer Institute and a Nurse Practitioner in the LiveStrong Survivorship Clinic. He was also the recipient of an unrelated bone marrow transplant in 1996 and lives with chronic graft versus host disease as well as other late effects. View the Webcast presentation at: http://dream.presentme.com/audio2011/20110824NMDPBoyajian/
Living Now: Healthy Living After Transplant
This webcast will help you learn about:
- the effect of positive health choices
- the importance of proper exercise, diet and nutrition
- the correlation between spirituality and healthy relationships and living a healthy lifestyle
This information is presented by Patricia Culliton, MA Lac, Lecturer. Ms. Culliton is the Director of the Alternative Medicine Division at the Hennepin Faculty Associates in Minneapolis, MN. She is also on the faculty at the University of Minnesota’s Center for Spirituality and Healing. View the Webcast presentation at:
http://dream.presentme.com/audio2010/20100825NMDPCulliton/
Living Now: Monitoring and Managing Late-Effects
This webcast will help you learn about:
- possible late effects of marrow and cord blood transplant
- recommendations for prevention of late effects
- how to take an active role in your post-transplant care and survivorship resources
This information is presented by Willis H. Navarro, MD, Medical Director of Transplant Services at the National Marrow Donor Program*. View the Webcast presentation at http://www.presentme.com/audio2009/20090923NMDPNavarro/
Meeting the Challenges of Chronic cGVHD in Children & Adolescents
Part I
“The Medical Aspects and Management of Chronic Graft Versus Host Disease (cGVHD) in Children & Adolescents,” provides an overview of marrow and cord blood transplants and factors that may impact the development of cGVHD; discusses the prevention and development of cGVHD, and offers information on identifying and managing the disease in children & adolescents. http://www.presentme.com/audio2009/20090901NBMTpart1/
Part II
"Families Coping with Chronic Graft Versus Host Disease (cGVHD) in Children & Adolescents," provides practical advice on how to cope with chronic GVHD and offers the perspectives and advice of three parents whose children are living with the disease. http://www.presentme.com/audio2009/20090901NBMTpart2/
A collaboration of Be The Match Patient Services and the National Bone Marrow Transplant LINK (nbmtLINK).