Living Now Conference Presentations

Living Now: A Survivors' Conference on Life after Transplant was held in San Francisco, Calif., and Philadelphia, Pa., in June 2007. The conference was designed for adult bone marrow or cord blood transplant survivors, caregivers, family members and health care professionals who were interested in learning the latest in post-transplant research and information.

Living Now drew almost 200 attendees. The conference proved to be a success, as nearly 90% of attendees ranked the presentations as very informative.

View conference presentations now

You can listen to and view any of the presentations using the links below. Windows Media^® Player (WMP) is required to view the presentations. WMP may be downloaded at www.microsoft.com/windows/windowsmedia/players.aspx
Note: If you are unable to access the presentations below, please contact us for assistance at patientinfo@nmdp.org.

Living Now: A Survivors’ Conference on Life after Transplant (WMV)
Elizabeth Murphy, Ed.D.
Provides an introduction to the National Marrow Donor Program (NMDP), the Office of Patient Advocacy, and the purpose of the conference.

Your Post-Transplant Road Map (WMV)
Navneet Majhail, M.D., M.S.
Reviews late complications of marrow and cord blood transplantation and recommendations for screening and preventing these complications.

Achieving a “New Normal” Life (WMV)
Kelly Bugos, N.P., M.S.
Discusses the long-term recovery process as a survivor or caregiver, memory and sleep quality changes, and ways to best adapt to a new normal life.

For Better and for Worse: Survivorship and Quality of Life after Transplant (WMV)
Michelle Bishop, Ph.D.
Presents the long-term effects of transplant on survivors’ and caregivers’ physical, functional, psychological, social and spiritual well-being.

Relationships and Intimacy after Transplant: For People with and without Partners (WMV)
Les Gallo-Silver, LCSW-R
Discusses the changes that occur in relationships from transplant and methods to restore intimacy after transplant.

Intimacy and Relationships: Addressing the Intimacy and Sexuality Issues of Survivors after Transplant (WMV)
Sage Bolte, M.S.W., LCSW, OSW-C
Discusses the effects of cancer on intimacy and sexuality and offers ideas for maintaining intimacy and sexuality.

Cancer and the Law (WMV)
Joanna Morales, Esq.
Provides information on cancer-related legal issues for cancer patients, families and caregivers.
(Note: There is no audio with this presentation. Each slide is shown for 15 seconds. If you want more time to view a slide, press the Pause button on the Windows Media Player. Press the same button again to resume playback.)  

Fatigue After Transplant (WMV)
Cathy Fortenbaugh, R.N., M.S.N., AOCN
Discusses the effects of treatment fatigue on a survivor’s quality of life, and tools to effectively manage fatigue.

Chronic Graft-Versus-Host Disease (GVHD): Symptoms, Prevention, Treatment: A Balancing Act (WMV)
Linda Cook, R.N., B.S.N.
Identifies risk factors for chronic GVHD; commonly targeted organs, signs and symptoms; and reviews prevention and treatment methods.